Aneesa Gracen

Aneesa Gracen founded the Jeremiah Gracen TK2d Foundation to raise awareness for the ultrarare mitochondrial disease community. Aneesa, a Trinidad-born mother of 4 residing in South Carolina, is an author, rare disease advocate, "medical-mama," and consultant. Her primary aim is to use her unique perspective on the disease to educate, inspire, and empower families globally.

All articles by Aneesa Gracen

Letting go of guilt after a TK2d diagnosis

Guilt thrives dangerously in hindsight.
Why support groups matter for parents of children with rare diseases

No family should have to navigate a rare disease journey completely alone.
Redefining a ‘good day’: The importance of rest for a child living with TK2d

A day filled with rest, care and connection is not a lesser day; in the world of TK2d, it is a successful one.
How chiropractic care supports my child’s TK2d diagnosis

One of the things we have learned is that small improvements in comfort can make a meaningful difference.
Writing the pages that don’t exist: Why sharing my son’s journey with TK2d matters

When there is no manual, you help write one.
Rising up to rare: How my life changed with my son’s diagnosis

Fear and grief threatened to consume me, but those emotions eventually became fuel.
Thrown into rare, and finding the puzzle pieces fit

What I did not realize at first was that I had been preparing all along.

Aneesa Gracen

All articles by Aneesa Gracen

Letting go of guilt after a TK2d diagnosis

Why support groups matter for parents of children with rare diseases

Redefining a ‘good day’: The importance of rest for a child living with TK2d

How chiropractic care supports my child’s TK2d diagnosis

Writing the pages that don’t exist: Why sharing my son’s journey with TK2d matters

Rising up to rare: How my life changed with my son’s diagnosis

Thrown into rare, and finding the puzzle pieces fit

The TK2D Journey