Aneesa Gracen

Aneesa Gracen founded the Jeremiah Gracen TK2d Foundation to raise awareness for the ultrarare mitochondrial disease community. Aneesa, a Trinidad-born mother of 4 residing in South Carolina, is an author, rare disease advocate, "medical-mama," and consultant. Her primary aim is to use her unique perspective on the disease to educate, inspire, and empower families globally.

All articles by Aneesa Gracen

How chiropractic care supports my child’s TK2d diagnosis

One of the things we have learned is that small improvements in comfort can make a meaningful difference.
Writing the pages that don’t exist: Why sharing my son’s journey with TK2d matters

When there is no manual, you help write one.
Rising up to rare: How my life changed with my son’s diagnosis

Fear and grief threatened to consume me, but those emotions eventually became fuel.
Thrown into rare, and finding the puzzle pieces fit

What I did not realize at first was that I had been preparing all along.

Aneesa Gracen

All articles by Aneesa Gracen

How chiropractic care supports my child’s TK2d diagnosis

Writing the pages that don’t exist: Why sharing my son’s journey with TK2d matters

Rising up to rare: How my life changed with my son’s diagnosis

Thrown into rare, and finding the puzzle pieces fit